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About the Authors

Tleulinova R.R. – Director of Nursing of NJSC "National Center for Children's Rehabilitation", Astana, Kazakhstan.

Pirmanova P.I. – Nurse of NJSC "National Center for Children's Rehabilitation", Astana, Kazakhstan.

Kazbekova F.U. – Nurse of NJSC "National Center for Children's Rehabilitation", Astana, Kazakhstan.

Kamalova K.S. – Nurse of NJSC "National Center for Children's Rehabilitation", Astana, Kazakhstan.

Abstract

Spina bifida is a complex congenital neural tube defect requiring comprehensive and long-term nursing care. This article analyzes the role of nurses in the diagnosis, treatment, and rehabilitation of patients with this condition. It explores the stages of preoperative preparation, postoperative care, and physical rehabilitation. Particular attention is given to the implementation of innovative technologies such as telemedicine and 3D visualization, as well as modern educational programs aimed at enhancing nurses' qualifications. The study identifies key aspects of nursing practice, including patient monitoring, complication prevention, and psychological support for families. Recommendations for standardizing the nursing process, including the development of specialized care protocols, are proposed. The conclusion emphasizes the importance of a systemic approach based on multidisciplinary coordination and innovative solutions to improve the quality of life for patients with spina bifida.

Keywords

Spina bifida, nursing process, diagnosis, treatment, rehabilitation, telemedicine, 3D visualization, multidisciplinary approach, educational programs, medical technologies, complication prevention, quality of life, patient care, psychological support, care standards.

References

1. Морозов С. Л. и др. Spina Bifida. Современные подходы и возможности к диагностике, лечению и реабилитации //Практическая медицина. – 2020. – Т. 18. – №. 3. – С. 32-37.
2. Калабрезе Ф. и др. Медицинский уход за пациентами со спина бифида: от пренатальной диагностики до взрослого возраста / Интервенции для улучшения качества жизни людей с недержанием мочи и кала при спине бифида // Italian Journal of Pediatrics. – 2024. – Т. 50. – № 1. – С. 48.
3. El Sharkawy M. H. H., El Araby M. E. S. Effect of nursing intervention on nurses' performance regarding care for neonates with spina bifida //Assiut Scientific Nursing Journal. – 2023. – Т. 11. – №. 36. – С. 79-91.
4. Мамедзаде Г. Т. Частота встречаемости дефектов сердца, spina bifida и синдрома дауна в баку-сумгаитском регионе Азербайджана //İCMALLAR-ОБЗОРЫ. – С. 119.
5. Phillips L. A., Burton J. M., Evans S. H. Spina bifida management //Current problems in pediatric and adolescent health care. – 2017. – Т. 47. – №. 7. – С. 173-177.
6. Петлах В. И. Первое отечественное руководство по детской хирургии и его автор Дмитрий Егорович Горохов //Российский вестник детской хирургии, анестезиологии и реаниматологии. – 2024. – Т. 14. – №. 4. – С. 585-599.
7. Fremion E., Bustillos P., Khavari R. Contemporary management considerations of urinary tract infections for women with spina bifida //International Urogynecology Journal. – 2022. – Т. 33. – №. 3. – С. 493-505.
8. Дэвис Х. Как помочь семье, в которой серьезно болен ребенок: взгляд психолога. – Litres, 2022.
9. Эшонова К. Г., Ем Ю. А. ХИРУРГИЧЕСКОЕ ЛЕЧЕНИЕ SPINA BIFIDA //Актуальная медицина. – 2018. – С. 709-713.
10. Ivanov S. V. et al. Spina bifida: a multidisciplinary problem (a literature review) //Russian Journal of Pediatric Surgery, Anesthesia and Intensive Care. – 2021. – Т. 11. – №. 2. – С. 201-213.
11. Nasrallah G. K., Zayed H., Qoronfleh M. W. Principal Molecular Pathways Affected in Autism Spectrum Disorder //Proteins Associated with Neurodevelopmental Disorders. – 2022.
12. Thibadeau J. et al. Philosophy of care delivery for spina bifida //Disability and health journal. – 2020. – Т. 13. – №. 2. – С. 100883.
13. Betz C. L. et al. Exploratory study of the provision of academic and health-related accommodations to transition-age adolescents and emerging adults with spina bifida //Journal of Pediatric Rehabilitation Medicine. – 2022. – Т. 15. – №. 4. – С. 593-605.
14. Dicianno B. E. et al. Scientific methodology of the development of the Guidelines for the Care of People with Spina Bifida: An initiative of the Spina Bifida Association //Disability and health journal. – 2020. – Т. 13. – №. 2. – С. 100816.
15. Macias M. M. et al. Predictors of parenting stress in families of children with spina bifida //Children's Health Care. – 2001. – Т. 30. – №. 1. – С. 57-65.